With the MS Cup race just under two weeks away, it's time (perhaps well past time) to ask for your help. Can you make a small contribution to the National MS Society in support of my MS Cup race?
I've seen first hand the amazing progress that the MS Society has made in research and programs just in the past 10 years since my own diagnosis, and I truly want to work hard to help find a CURE in my lifetime.
Why should you help? It might sound like a cliche, but perhaps the answer is 'Because you can.' If everyone could contribute just $10, we'd make a sizable dent in fundraising. There is no need to feel uncomfortable about donating ONLY $10. If that's what you can spare, it will be graciously and sincerely appreciated. If you can afford to give more, that is certainly acceptable as well. :)
This is the link to my MS Society web page where you can click on the 'DONATE' button to make a secure online contribution.
If you have a few extra minutes and the energy to take it up another step, you can click on the 'JOIN' button at the web site, and create your own page to do some fundraising for the MS Cup.
If you prefer to make contributions the 'old fashioned way,' you can send checks (made payable to National MS Society) to my home address:
P.O. Box 82
Wayzata, MN. 55391
My health update for 2013 in a single word? Fatigue. MS Fatigue is not about being tired. That's certainly part of it, but it's mostly about feeling completely and absolutely drained. My fatigue is chronic and persistent, and it affects my cognitive skills just as much (or more than) my physical skills. If my energy level could be viewed as 'how full is my tank?' then I'm living on 1/8 to 1/4 tank on average days, and on many days, I'm running on fumes. On hot, humid days when the dewpoint is in the high 60s or 70s, my personal fuel gauge (if it were visible) would probably be showing as below empty.
I met with my neurologist two weeks ago, and reviewed the new MRI scans, with mixed results. The bad news is that there are two new lesions on my spinal cord. The good news is there is nothing new in my brain, and no lesions are currently 'active.' Prognosis: I might still be alive next week! ;)
Since fatigue is an example of one of my 'invisible' symptoms, most of the time, people can't actually SEE the effects of my MS. I know better since I live with the challenges every day, and it's very real. All the same, I'm one of the fortunate ones. Many friends with MS have seen progression that has left them in wheel chairs, or unable to work. I'm still staying positive, and moving forward. My life is a series of adventures, and some really cool ones are still coming up this year. I want to live life with passion, and I plan on keeping a smile on my face.
Thank you for helping to make a difference!
by Blake Middleton
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4:03 PM Wed 14 Aug 2013GMT
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